https://www.rohhad.org/familya daily 0.75 2022-01-21 https://www.rohhad.org/home-foster daily 1.0 2025-09-03 https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/1618260499982-K66EWWA4KYVXTQ8YMPEJ/rdd-logo.jpg Home https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/1618260448347-QGII26MKFN8UGP9KLS12/scope.jpg Home https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/1618214945977-CD2TWD0SB9KU503MQ2FS/Earth.jpg Home https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/1618239051383-ZN7LU1CAV5RHO91I4AV5/home-image.jpg Home https://www.rohhad.org/what-is-rohhad daily 0.75 2021-04-15 https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/1618473866079-WNAYG1KLKY15MB4R41CH/home-image.jpg What is ROHHAD? This is a place-holding image for now - This is a place-holding image for now - This is a place-holding image for now https://www.rohhad.org/symptoms daily 0.75 2021-04-15 https://www.rohhad.org/families daily 0.75 2025-09-23 https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/5ee59e9e-c448-4fe7-9bc0-e118d056dba3/Orphanet.jpg Family Resources - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/1632398761066-6FJCB0DQO8IBTCUWAA2A/ROHHAD+SUPPORT+GROUP.jpg Family Resources - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/1635092751792-HO4A4YENT7ORIOY7KY8G/unsplash-image-pIJ34ZrZEEw.jpg Family Resources - Make it stand out VACCINATION FOR ROHHAD PATIENTS https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/b424cfb3-4801-412f-993c-58f3e69338c9/ROHHADfight.jpg Family Resources - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/1632398723007-VC5HRG0YS8UL2BXQ92IN/RA.jpg Family Resources - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/579bcf50-25c5-494e-8128-cf6e9d689cc1/Screenshot+2022-01-06+175646.jpg Family Resources - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/2aa0710a-fb4e-4bf8-b885-71d5e8b95b6e/ROHHADSyndrome.jpg Family Resources - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/f8a51664-3f30-4e6b-a17e-4a6a077f22cc/ROHHADJAPAN.png Family Resources - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/c4291f26-9cf2-408a-a85a-99a166539d91/ROHHAD-Nordic.jpg Family Resources - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.rohhad.org/research daily 0.75 2025-09-23 https://www.rohhad.org/toothproject daily 0.75 2025-09-03 https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/4035b1bd-3b85-460e-82a9-4df4761d0f87/weese-mayer-epi-2021.png The Tooth Fairy Project Co Project Lead Dr. Debra E. Weese-Mayer, MD https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/c177fbc7-d91e-434a-a833-f9c0298bbec7/Torben+Bech-Hansen.jpg The Tooth Fairy Project - Make it stand out Torben Bech-Hansen https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/92db55f3-49d8-4591-bc27-3477c7927e65/ReiterLab_2021.png The Tooth Fairy Project Larry Reiter (2nd from left) and his team https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/551eab0c-ced0-4235-aa00-75764f860041/downloadkurek.jfif The Tooth Fairy Project Kyle Kurek https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/1618408284844-GBZIEUPDL9M1UH3108F8/scope.jpeg The Tooth Fairy Project Dental pulp stem cells give scientist an exciting new, non-invasive way to study neural cells https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/478abbce-0aab-4a84-a0ab-ebec40c3efd0/download+barclay.jfif The Tooth Fairy Project Sarah Barclay https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/db07bee5-068d-4605-af1c-a35763cb0372/weese-mayer-epi-2021.png The Tooth Fairy Project - Make it stand out Debra Weese-Mayer https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/e29cd494-260c-4f4e-8c8f-8eb0991a27a3/Headshot_Reiter.jpg The Tooth Fairy Project - Make it stand out Co Project Lead: Dr. Larry Reiter, PhD https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/88aa0dde-a8d5-4452-98f7-3d44dc8dd230/Headshot_Kaitlyn.jpg The Tooth Fairy Project Kaitlyn Victor https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/1625068710511-URQJDQPOFFJVN1HD0ITA/ToothFairyProject.jpg The Tooth Fairy Project - Make it stand out See how DPSCs in other ROHHAD patients have been turned into neurons. Amazing! https://www.rohhad.org/helpric daily 0.75 2025-07-02 https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/d6d9896a-94a1-42e6-b101-26042882e22b/thumbnail_image1.jpg Help RIC “Hello all, with our selfie game on point, Aaron and I are devising ways we can #gomadforrohhad...” https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/1618241299232-DPZO51L584CWP9TRXC1R/Award.jpeg Help RIC Pride Of Britain Awards - ROHHAD fighter, Aaron Hunter, received his Young Fundraiser award with Ben Shepherd, Cheryl and Susanna Reid in 2019 https://www.rohhad.org/contact daily 0.75 2022-02-04 https://www.rohhad.org/about-ric daily 0.75 2022-02-24 https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/1618409461530-Q9C3L6MBP444C3PATVXI/CoverImage.jpg About RIC https://www.rohhad.org/research-project-2-1 daily 0.75 2025-09-03 https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/28dcbb18-3fd3-4d4d-9996-a96668ab990f/FASQUELLE+Corinne.jpg The ROHHAD Epigenetic Project - Make it stand out Corinne Fasquell - genome analysis https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/1628276595334-XXZYTAVZZ6H4HJCO2893/EPIGENETIC.jpg The ROHHAD Epigenetic Project https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/10f8f404-101d-46a0-8a57-7015ba0e921a/JOSSE+Claire.jpg The ROHHAD Epigenetic Project Claire Josse - RNA-Seq https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/0843dd66-0adc-4802-bb95-a25a370d2462/LUMAKA+Aime.jpg The ROHHAD Epigenetic Project - Make it stand out Dr Aimé Lumaka - genome analysis https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/10a1119f-4d67-43ef-a6a4-75a4cb8c03f4/JHarvengt2%281%29.jpg The ROHHAD Epigenetic Project Team leader, Dr Julie Harvengt, Clinical Geneticist https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/15f2bf0f-27ba-4214-a5e2-2b0adbcce0db/headshot.png The ROHHAD Epigenetic Project - Make it stand out Sol Schwartzman Expert in epigenetics. https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/15f2bf0f-27ba-4214-a5e2-2b0adbcce0db/headshot.png The ROHHAD Epigenetic Project - Make it stand out Leonor Palmeira - bio-informatics https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/15f2bf0f-27ba-4214-a5e2-2b0adbcce0db/headshot.png The ROHHAD Epigenetic Project Keith Durkin - RNA-Seq https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/09199a3c-16bc-4188-a328-b95b6277da79/V+BOURS.jpg The ROHHAD Epigenetic Project Pr Vincent Bours Head of the Human Genetic Department, CHU Liège, Belgium. Promoter of the ROHHAD EPIGENETIC Project. https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/ea2322ae-8bcc-40d1-8f68-ba5264348411/JHarvengt.jpg The ROHHAD Epigenetic Project Dr Julie Harvengt Clinical geneticist with a background in pediatric endocrinology. PhD Student, Human Genetic Department, CHU Liège, Belgium. https://www.rohhad.org/conference daily 0.75 2022-01-31 https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/1618478257335-PB4I6MRPF4IUZPD80KMP/rdd-logo.jpeg Online Conference https://www.rohhad.org/testing daily 0.75 2021-09-23 https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/1632385304234-C9IM47KZU3OEN17I2EM6/Photo+on+29-09-2020+at+14.18.jpg TESTING PAGE - Make it stand out …however this one has been dropped in at the full page width https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/1632385228477-4Q3DYBV1MBYE2IHWTNVJ/Photo+on+29-09-2020+at+14.18.jpg TESTING PAGE - Make it stand out Images can either go within other text boxes as is the case here… https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/1632385410264-SZ787NL8P2R0LDAMJUVT/Photo+on+29-09-2020+at+14.18.jpg TESTING PAGE - Make it stand out …or if you want to use them bigger like this, they can be used as separate blocks. This one is in line with the text box above… https://www.rohhad.org/clinicians daily 0.75 2022-01-31 https://www.rohhad.org/rohhad-registry daily 0.75 2025-09-03 https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/1f654c59-cf5e-43a9-9d54-9cedf9da0a89/weese-mayer-epi-2021.png International ROHHAD Registry Team leader, Dr Debra E Weese-Mayer MD https://www.rohhad.org/research-project-2-1-1 daily 0.75 2025-09-03 https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/162e4bd9-5e14-4aae-8e84-0ff8d2c1d06a/Benson-Leslie.jpg Exploring ROHHAD Brain Inflammation and Hormones Team leader, Dr Leslie Benson MD https://www.rohhad.org/research-project-2-1-1-1 daily 0.75 2022-02-23 https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/9bf990c3-0c09-4e16-b1f4-5a24fe5aa527/337x450VT.jpg Hypothalamic cellular model Team leader, Dr Vidhu Thaker MD https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/fce7fb62-cb3d-4605-8e7f-2f219d58e1cd/figureVT.png Hypothalamic cellular model - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.rohhad.org/rarediseaseday daily 0.75 2025-09-03 https://www.rohhad.org/gene-causes-rohhad daily 0.75 2025-09-03 https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/779a4ea0-200d-485a-9b02-f1629582c898/Prof+Dattani.jpg The Gene that Causes ROHHAD Team leader, Prof Mehul Dattani, MBBS DCH FRCPCH FRCP MD https://www.rohhad.org/bpsu-rohhad daily 0.75 2025-09-03 https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/6a784a9d-c486-47e6-8d8c-28ecc4a728ef/Picture4.png British Paediatric Surveillance Unit of ROHHAD Syndrome - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/09690775-6625-4609-a157-ae230fb53d47/shield.jpg British Paediatric Surveillance Unit of ROHHAD Syndrome - Make it stand out Co-leader: Prof Julian Hamilton-Shield, University of Bristol https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/1b267e01-f46c-481e-a843-b8366304a06a/hawton.jpg British Paediatric Surveillance Unit of ROHHAD Syndrome - Make it stand out Team leader: Dr Katherine Hawton, University Hospitals Bristol and Weston NHS Foundation Trust (UHBW) https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/c54cff5a-39d2-4d32-a2df-7f3cf714acc8/Picture3.png British Paediatric Surveillance Unit of ROHHAD Syndrome - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/71db070e-8232-4658-adc7-f94dd55fdaac/Picture5.png British Paediatric Surveillance Unit of ROHHAD Syndrome - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.rohhad.org/autoantibody-cancergenomics daily 0.75 2025-09-09 https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/054aee3d-da56-4efe-82b8-e2a548511427/Picture1.jpg The ROHHAD-related Autoantibody and Cancer Genomics Project - Make it stand out Team leader: Dr. Akari Nakamura-Utsunomiya, MD. and Ph.D. https://www.rohhad.org/pathogenesis-of-rohhad daily 0.75 2025-09-09 https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/1f8600e6-9148-46bd-807a-2026285e0673/armangue.png The Pathogenesis of ROHHAD - Make it stand out Team leader: Dr. Thais Armangue MD, PhD https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/c34ed2d1-79ec-4ed7-84ca-ae223c36851e/sabater.jpg The Pathogenesis of ROHHAD - Make it stand out Team leader: Dr. Lidia Sabater PhD https://www.rohhad.org/rohhad-publications daily 0.75 2025-09-23 https://images.squarespace-cdn.com/content/v1/6073fdd530c73a5ec21b7253/2f73415c-0838-4150-82da-639fd20bc18a/rohhad+unfolding.png ROHHAD Publications - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.rohhad.org/rohhad-zscan1-publications daily 0.75 2025-09-23 https://www.rohhad.org/rohhad-anesthesia-publications daily 0.75 2025-09-23 https://www.rohhad.org/products-foster daily 0.75 2021-04-14