ROHHAD IC Rare Disease Day (2022) PResentations

On Rare Disease Day 2022, ROHHAD IC hosted the innagural ROHHAD Rare Disease Day. This event brought together patient advocacy groups, patients, families, clinicians and researchers to share the latest ROHHAD research and discuss future teamwork to advance ROHHAD research and treatment. Below are recordings of some of the presentations from this event. We hope to have additional events in the future to share our progress and build collaboration in the ROHHAD community.